Sunday, December 28, 2014
Quinolone Vigilance Foundation honors Public Relations Director Jenny Frank with a plaque to thank her for all her hard work. Jenny was featured in seven news stories, wrote an excellent Press Release, which was picked up by several media outlets, and she does a great job behind the scenes also. Thank you for all you do Jenny! You are a true asset to our team.
Wednesday, December 24, 2014
Quinolone Vigilance Foundation honors Dr Joe Hudak from Hudak Chiropractic. Dr Joe has been treating fluoroquinolone toxicity patients for a long time and he genuinely cares about his patients. His knowledge and experience makes him a wonderful addition to our team. Thank you for all you do Dr. Joe!
Quinolone Vigilance Foundation's Executive Director Rachel Brummert honors Donna Schutz for outstanding service as Assistant Director and Ambassador Coordinator.
Donna works very hard behind the scenes and we appreciate all her hard work.
Monday, December 22, 2014
Quinolone Vigilance Foundation had a very busy and productive year in 2014.
In February, Assistant Director Donna Schutz and her fiance Jeff Stephens were interviewed for a Croatian radio station. The station heard about their love story. Donna lives in Australia and Jeff lives in Atlanta, Georgia. They have had a 16,000 mile long distance relationship for five years. The interview starts at 0:45:00 minutes and finishes at 1:06:40. At approximately 58:40 is about fluoroquinolones and QVF http://radio.hrt.hr/drugi-program/ep/gladne-usi-13022014/54501/. This is the English Raw version with an added video to the interview: https://www.facebook.com/photo.php?v=10202541591173861 .
In March, Dr. Charles Bennett from the University of South Carolina published a QVF study on fluoroquinolone induced cardiac issues in the Annals of Family Medicine. http://annfammed.org/content/12/2/121
Also in March, Quinolone Vigilance Foundation connected with Ryan Clarkson, owner of Clarkson Law Firm in Santa Monica, California. Mr. Clarkson's firm was the first firm to review fluoroquinolone-induced peripheral neuropathy. A week and a half later, QVF connected with Baron & Budd Law Firm, a national law firm which partnered with Clarkson Law Firm to try peripheral neuropathy cases.
www.clarksonlawfirm.com and www.baronandbudd.com
As she does every year, President and Executive Director Rachel Brummert attended Johnson & Johnson's shareholder meeting in April in New Brunswick, New Jersey to speak with CEO Alex Gorsky. Ms. Brummert was invited for a private meeting at Johnson & Johnson headquarters for a follow-up meeting.
Sometimes QVF hits snags along the way. In May, QVF materials were stolen in Australia. Constable Jennifer Favorito recovered everything after an investigation was launched. QVF Assistant Director Donna Schutz arranged a special presentation to honor Constable Favorito for her hard work. Ms. Schutz went on to educate the police department about fluoroquinolones. Luckily this snag had a happy ending!
Part of Ms Schutz's presentation can be found here: https://www.youtube.com/watch?v=63Ti2IM9LI4
QVF was asked several times this year to come and educate doctors. In May, Ms Brummert met with Rothman Institute, a specialized orthopedic hospital in South Jersey; she also met with Capital Health Systems.
On June 11, we had sad news to report. Bob Grozier, an activist who was severely damaged by Cipro, died at the age of 55. We will never forget him. http://clarksonlawfirm.com/blog/dead-from-cipro-at-55-quinolone-antibiotic-injury-victims-mourn-loss-of-activist-bob-grozier/
On June 26, President and Executive Director Rachel Brummert and Assistant Director Donna Schutz traveled to Atlanta, Georgia for a presentation at Progressive Medical Center about fluoroquinolones. Joining them were floxies Jeff Stephens and Bill Milligan. Progressive Medical Center treats fluoroquinolone toxicity patients. www.progressivemedicalcenter.com. Thank you Donna Schutz and Carey Spurgeon for arranging the presentation. It went very well and we continue to work with Progressive.
At the end of July, QVF elected Leslie Day to the position of Secretary, succeeding Alice Broussard, who needed to step down after a year and a half of faithful service.
During the summer, President and Executive Director Rachel Brummert met with Robert Wood Johnson University Hospital to speak with the medical board about how fluoroquinolones are prescribed. 1) Informed patient consent after being warned of the risks. 2) Only for life threatening infections. 3)Verify that there is an infection in the first place. 4)Never to children.
Quinolone Vigilance Foundation also supported a Citizens Petition submitted by Dr. Charles Bennett from the University of South Carolina to The US Food and Drug Administration. This Citizen Petition is asking the FDA to add Mitochondrial Toxicity to a 3rd Black Box warning. Through a Freedom of Information request, there is solid documentation from the FDA themselves which states that they have been aware that fluoroquinolones cause Mitochondrial Toxicity and never told doctors or patients of this link. Mitochondrial Toxicity causes diseases such as Parkinson's, ALS, Alzheimer's, MS, and Neurosarcoidosis. QVF is calling on the FDA to immediately issue this Black Box warning and use their own words on the label. http://www.saferpills.org/citizen-petition/.
Also in August, Quinolone Vigilance Foundation received its non-profit 501(c)(3) status from the Internal Revenue Service, 15 months after we applied for it.
We also kicked off our annual online auction to help us fund research and to raise awareness.
Rounding out the month of August in the good news department was that Tom Sims from Baron & Budd Law Firm filed the first of many rounds of lawsuits against the makers of fluoroquinolone antibiotics, specifically against Johnson & Johnson and Bayer. http://www.businesswire.com/news/home/20140826006280/en/Baron-Budd-Files-Litigation-Levaquin-Avelox-Cipro#.VHqaBslu2eU . We are very grateful for all of his hard work.
This is a breakdown on course of action in the pleadings:
1. Liability damages
2. Failure to warn
4. Breach of expressed warranty
5. Breach of implied warranty
7. Negligent misrepresentation
8. Fraudulent concealment
On August 25, Rachel Brummert hosted a conference at Capital Health Systems, educating over 80 doctors about fluoroquinolones. This was our biggest presentation yet.
That same day, Ms Brummert submitted documents and Comments to Dr. Walter Ellenberg at the FDA for a September 23, 2014 FDA Pediatric Advisory Committee Meeting in Bethesda, Maryland. These documents were presented to everyone at the Committee Meeting to request that they reconsider the use of Pediatric Levaquin in children. Those documents and Comments have been forwarded to the Centers for Disease Control and Prevention.
September was also a busy month. Quinolone Vigilance Foundation issued 3 press releases:
-September 2, 2014- Quinolone Vigilance Foundation Press Release published: http://www.saferpills.org/contact/media-inquiries/quinolone-vigilance-foundation-warns-levaquin-cipro-avelox-may-result-neurodegenerative-diseases/
-September 15, 2014- Press release published: http://www.saferpills.org/contact/media-inquiries/quinolone-vigilance-foundation-supports-citizen-petition-requesting-another-black-box-warning-levaquin-cipro-avelox/
-September 16, 2014- Quinolone Vigilance Foundation Press Release published addressing the documents and Comments that Executive Director Rachel Brummert submitted to the FDA for a September 23, 2014 FDA Pediatric Advisory Committee Meeting in Bethesda, Maryland: http://www.saferpills.org/request-fda-investigate-potential-levaquin-link-mystery-illnesses-california-children/
Also in September, QVF supported another Citizen Petition submitted by Dr. Charles Bennett from the University of South Carolina to the FDA requesting a 4th Black Box Warning regarding Psychiatric Effects. http://www.saferpills.org/citizen-petition-psychiatric-effects/
September also saw QVF cast in the national spotlight, starting with an article written by Michelle Lee for the Arizona Republic featuring QVF Public Relations Director Jenny Frank. http://www.azcentral.com/story/news/local/arizona/2014/09/17/critics-demand-stronger-warnings-potent-antibiotics/15759755/ . The story was picked up in USA Today http://www.usatoday.com/story/news/nation/2014/09/17/levaquin-antibiotic-side-effects/15767249/ and Detroit Free Press http://www.freep.com/story/life/wellness/2014/09/17/antibiotics-warning-labels-fda/15770411/ .
A few days later, on September 22, Rachel Brummert lead a conference educating doctors and administrators about Fluoroquinolone Toxicity at CentraState Medical Center.
The next day, Irvin Jackson wrote an article about the Citizens Petition requesting the FDA add a Psychiatric Effects Black Box Warning to fluoroquinolones. Quinolone Vigilance Foundation is mentioned, and President and Executive Director Rachel Brummert is quoted. http://www.aboutlawsuits.com/antibiotic-black-box-petitions-71197/
The day after that, on September 23, Quinolone Vigilance Foundation attended a FDA Pediatric Advisory Committee meeting in Bethesda, Maryland to present a report requesting the FDA reconsider the use of Levaquin in children and requesting that the FDA open an investigation into whether Levaquin is causing paralyisis and "mystery illness" in children in California.
In October, President and Executive Director Rachel Brummert met twice with CentraState Medical Center in New Jersey to educate their doctors about fluoroquinolones, and met with the medical board to advise them on safer prescribing procedures for fluoroquinolones if one must be used in a life-threatening situation, and to help implement informed consent after being advised of the risks.
Rachel Brummert was interviewed by two reporters for stories that will be published at a later date.
We did hit a snag in mid-October. QVF was the victim of identity theft. Our corporate card number was used for fraudulent purchases. Our bank notified Executive Director Rachel Brummert and the matter was quickly resolved. Every penny was recovered and additional measures were implemented to make sure this never happens again. We are thankful for the bank's fraud department for alerting us so quickly. Quinolone Vigilance Foundation's policy is to cooperate with all levels of law enforcement. We continue to assist law enforcement in their investigation and the perpetrator will be prosecuted to the fullest extent of the law.
Ending October, Quinolone Vigilance Foundation welcomed Dr. Joe Hudak to the Board of Directors. He received his Doctor of Chiropractic Degree from New York Chiropractic College after completing his undergraduate studies at Middlesex County College. To further his education, he completed an intensive residency program at Levittown Health Center in Long Island, New York. Dr. Hudak then went on to work as a Senior Associate at Park Avenue Chiropractic in Manhattan before returning to the Edison Area to open his state of the art office facility where he currently practices.
November was very exciting. Several news stories aired featuring Public Relations Director Jenny Frank.
November 3, 2014- Quinolone Vigilance Foundation's Arizona Ambassador and Public Relations Director Jenny Frank is interviewed for a news story that aired on ABC15. http://www.abc15.com/news/local-news/investigations/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label
November 3, 2014- Quinolone Vigilance Foundation's Arizona Ambassador and Public Relations Director Jenny Frank is interviewed for a news story that aired in NBC12. Quinolone Vigilance Foundation is specifically mentioned: http://www.azcentral.com/videos/news/local/arizona/2014/11/04/18450053/
November 14, 2014- ABC7 in Detroit, Michigan aired Dave Biscobing's news story featuring QVF's Public Relations Director Jenny Frank: http://www.wxyz.com/news/local-news/investigations/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label
November 15, 2014- WRTV ABC in Indianapolis aired Dave Biscobing's news story featuring QVF's Public Relations Director Jenny Frank:
November 18, 2014- WPTV in Palm Beach, Florida aired Dave Biscobing's news story featuring QVF's Public Relations Director Jenny Frank http://www.wptv.com/money/consumer/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label
November 18, 2014- WCPO in Cincinnati aired Dave Biscobing's news story featuring QVF's Public Relations Director Jenny Frank http://www.wcpo.com/news/health/healthy-living/levaquin-popular-antibiotic-carries-side-effects-not-listed-on-label
November 24, 2014- ABC10 in San Diego airs news story featuring QVF's Public Relations Director and Arizona Ambassador Jenny Frank and QVF's Palmdale, California Ambassador Tony Woods. http://www.10news.com/news/investigations/patients-experts-popular-antibiotics-could-cause-permanent-damage-11242014
QVF also began working with Lincoln Combs and Mark O'Connor from Gallagher & Kennedy Law Firm, who are reviewing cases of fluoroquinolone-induced peripheral neuropathy. www.gknet.com
At the end of November, released our first promotional video.
More coming soon.
In December, Executive Director Rachel Brummert presented Thomas Sims from Baron & Budd Law Firm with a plaque thanking him for all of his hard work on behalf of fluoroquinolone victims.
Rachel writes about their meeting here: https://www.facebook.com/notes/quinolone-vigilance-foundation/qvf-meets-with-tom-sims-from-baron-budd/877177628967779
In addition, Quinolone Vigilance Foundation also honored Ryan Clarkson from Clarkson Law Firm for his hard work on behalf of the fluoroquinolone community.
Mr. Clarkson was kind enough to make a video for us. https://www.youtube.com/watch?v=HKzBdQ2RAz4
On December 16, Quinolone Vigilance Foundation created a YouTube channel. https://www.youtube.com/channel/UCqLU8_J7YCE773rKbjAWdgw
Rachel Brummert was interviewed by Lisa Bloomquist, founder of Floxie Hope. Ms Brummert is featured in Episode 3, dated December 17th. In it, she talks about the history of QVF, current projects, and future projects. December 17, 2014- Executive Director Rachel Brummert was interviewed for an iTunes podcast by Lisa Bloomquist, founder of Floxie Hope.
Ms. Brummert's interview is Episode 3 dated December 17:
Executive Director Rachel Brummert honored Donna Schutz in Villa Rica, Georgia with a plaque for outstanding service to QVF on December 23. Ms Schutz is an integral part of QVF and works very hard behind the scenes.
Quinolone Vigilance Foundation also honored Susan Knape, Communications Director at Baron & Budd Law Firm. Susan is a strong supporter of QVF and has worked very hard to help us.
We also honored Dr Joe Hudak from Hudak Chiropractic. Dr Joe has been treating fluoroquinolone toxicity patients for a long time and he genuinely cares about his patients. His knowledge and experience makes him a wonderful addition to our team. Thank you for all you do Dr. Joe!
In addition, we honored Public Relations Director Jenny Frank with a plaque to thank her for all her hard work. Jenny was featured in seven news stories, wrote an excellent Press Release, which was picked up by several media outlets, and she does a great job behind the scenes also. Thank you for all you do Jenny! You are a true asset to our team.
Throughout the year, President and Executive Director Rachel Brummert wrote several articles and guest blogs:
March 27, 2014- http://baronandbudd.com/protecting-whats-right/2014/03/the-quinolone-vigilance-foundation/
June 3, 2014- http://clarksonlawfirm.com/blog/qvf-warns-users-of-cipro-levaquin-and-avelox-of-nerve-damage-risk/
June 16, 2014- http://clarksonlawfirm.com/blog/dead-from-cipro-at-55-quinolone-antibiotic-injury-victims-mourn-loss-of-activist-bob-grozier/
June 24, 2014- http://clarksonlawfirm.com/blog/it-only-takes-one-how-levaquin-forever-damaged-my-life/
June 30, 2014- http://carenovatemag.com/personal-account-prescription-destruction-black-box-warning/
August 4. 2014- http://baronandbudd.com/protecting-whats-right/2014/08/tips-for-those-doctor-visits-from-the-quinolone-vigilance-foundation/
August 13, 2014- http://clarksonlawfirm.com/general/avoiding-quinolone-antibiotics-during-surgery-one-womans-story/
August 14, 2014- https://www.facebook.com/notes/quinolone-vigilance-foundation/depression-and-suicide-tips-and-warning-signs/818814418137434
August 18, 2014- http://www.progressivemedicalcenter.com/progressive-medical-center-supports-the-quinolone-vigilance-foundation/
September 7, 2014- https://www.facebook.com/notes/quinolone-vigilance-foundation/explaining-fluoroquinolone-toxicity/830255793659963
September 29, 2014- http://baronandbudd.com/protecting-whats-right/2014/09/levaquin-fluoroquinolones-affect-your-brain/
October 16, 2014- http://clarksonlawfirm.com/general/finding-and-working-with-a-levaquin-cipro-or-avelox-nerve-damage-attorney-guest-blog-by-qvf-executive-director-rachel-brummert/
October 28, 2014- http://clarksonlawfirm.com/blog/but-stupid-things-people-say-about-fluoroquinolone-toxicity-guest-post-by-qvf-executive-director-rachel-brummert/
November 5, 2014- https://www.facebook.com/notes/quinolone-vigilance-foundation/more-stupid-things-people-say-about-fluoroquinolone-toxicity/860032547348954
November 6, 2014- : https://www.facebook.com/notes/quinolone-vigilance-foundation/viral-vs-bacterial-infections/860172097334999
November 6, 2014- https://www.facebook.com/notes/quinolone-vigilance-foundation/travel-tips-for-those-with-fluoroquinolone-toxicity/860580987294110
November 8, 2014- https://www.facebook.com/notes/quinolone-vigilance-foundation/fluoroquinolones-in-pets/861353870550155?notif_t=like
November 22, 2014- http://clarksonlawfirm.com/blog/the-uglier-side-of-fluoroquinolone-toxicity-guest-post-by-rachel-brummert-executive-director-of-qvf/
November 24, 2014- https://www.facebook.com/notes/quinolone-vigilance-foundation/im-not-sorry/869265403092335
November 28, 2014- https://www.facebook.com/notes/quinolone-vigilance-foundation/surviving-the-holidays-with-fluoroquinolone-toxocity/871855786166630
December 11, 2014- http://baronandbudd.com/protecting-whats-right/2014/12/fluoroquinolone-toxicity-im-not-fine/?utm_source=subscribe2&utm_medium=email
Throughout the fall and winter, Quinolone Vigilance Foundation and President and Executive Director Rachel Brummert were nominated for six WEGO Health Awards.
Winners will be announced in early 2015.
QVF has accomplished quite a bit in 2014, and we are looking forward to another productive year. Quinolone Vigilance Foundation will have a charity fundraising concert on Friday, March 13 in Stafford, Virginia. There will be four bands. Check back soon for updates on the concert.
Without all of you, our Board of Directors, volunteer staff, and Ambassadors, we would not be able to do what we do. Thank you for your continued support.
If you would like to help us continue our work, please consider a donation. We are a 501(c)(3) organization and donations are tax deductible.
Quinolone Vigilance Foundation's
PO Box 4023
Hamilton, NJ 08610
Rachel Brummert, President/Executive Director
Matthew Arnold, Vice President
Donna Schutz, Assistant Director
Leslie Day, Secretary
Christina Manthos-Sorrell, Treasurer
Michelle Fewer, Fundraising Director
Dr. Deanna Minkler, General Board Member
Dr. Joe Hudak, General Board Member
Lori Boz, R.N., Consultant
Victoria Chiovare, Assistant Fundraising Director
Jenny Frank, Public Relations Director
Thursday, December 18, 2014
Executive Director Rachel Brummert was interviewed for an iTunes podcast by Lisa Bloomquist, founder of Floxie Hope.
Ms Brummert goes over her
The QVF is engaged in research, advocacy, outreach and other activities related to helping victims of fluoroquinolone toxicity. The Mission of the QVF is to understand and reduce Quinolone/Fluoroquinolone Toxicity as a cause of human suffering in the world.
Ms. Brummert's interview is Episode 3 dated December 17:
iTunes – https://itunes.apple.com/us/podcast/floxie-hope-podcast/id945226010
Tuesday, December 16, 2014
Quinolone Vigilance Foundation honors attorney Ryan Clarkson for working so hard for the fluoroquinolone community. Clarkson Law Firm has been carrying the flag on the fluoroquinolone cases since 2013. QVF is very proud to be working with his firm and we appreciate all his hard work.
Clarkson Law Firm
448 S. Hill St.
Los Angeles, CA 90013
Thursday, December 11, 2014
*Baron and Budd Law Firm published 'I'm Fine' on their blog.
Under these two words that sound positive hides a darker, hidden truth.
With Fluoroquinolone Toxicity, it can mean:
“I'm not okay”
“I'm in pain”
“I'm having brain fog and I feel like my brain doesn't work”
“My joints/tendons are flaring”
“I don't know how to ask for help”
“I'm worried you will judge me if I tell you how horrible I am feeling”
“I'm pushing through anxiety”
“I'm scared you are tired of hearing me be honest about what is happening to me”
I am guilty of using “I'm fine” when I'm not. When I do that, I am robbing the people around me the opportunity to help me, and more importantly, I am robbing myself of a good life. I am putting myself further into isolation. I am sabotaging my recovery by bottling up how I am really feeling.
Suffering from Fluoroquinolone Toxicity is isolating and difficult all by itself and by reinforcing the mask of “I'm fine”, I am letting this condition win.
I admit, I was not someone who easily asked for help. It made me feel weak. It made me feel inadequate. It made me feel useless. Then I would sink into further isolation because I was so hard on myself. And then I would be in more pain because stress aggravates my physical health. It became an endless cycle.
I made the decision to reduce my stress by divorcing myself from stressful people and situations and to surround myself with people who inspire and encourage me, and who are willing to help me. I made a conscious decision to turn “I need help” into something positive so that I wouldn't have to sink into the desperation of “I'm fine”. “I need help” is no longer a weakness; it's a sign of strength.
In my position as President and Executive Director of Quinolone Vigilance Foundation, and as someone who was severely injured by Fluoroquinolone Toxicity, I am very fortunate to work with a great team. I have learned to delegate responsibility without feeling guilty about it, and as a result, we get a lot done.
The same goes for my personal life. I have wonderful people in my life who feel helpless about what I go through and they see me struggle.
How am I changing “I'm fine” to “I need help”?
- I realize that asking for help is not a weakness. I am choosing to turn it into a strength. I make the choice to make asking for help into a strength. I realize what my limitations are and that benefits my health and my sanity by recognizing that.
- I have learned what I need help with and who is best suited to help me with it. People are more eager to help than you might think. I have come to realize that it is just as difficult for the people around me to watch me suffer as it is for me to go through it.
- I have learned how to say NO- even to myself. Taking things on that will cause me more pain, frustration, anxiety, and a decline in health is no longer an option because I value myself too much to accept anything less. Having Fluoroquinolone Toxicity does not make me less of a person; only I have that power and I will not allow that for myself any longer. Accepting help makes me feel better physically and emotionally because I'm not hard on myself from the frustration and I am not causing myself further injury by trying to do it myself. Putting myself in a position that could cause more injury and frustration could set me back for days, weeks, or longer. I learned that the word “No” isn't the negative word we think it is. Giving yourself the power to say “No” only means that you value your health more than pleasing people.
- If someone I love became disabled and was embarrassed by their disability, I would do everything in my power to help them. I realize now that I don't have to be hard on myself for something that I would never want for someone else.
- I no longer hold myself to the standards of my Pre-Toxicity life or dwell on what I can't do anymore. I realize I can't do it and that's okay.
- I realize that I have more support than I ever gave anyone credit for. By saying “I'm fine” when I wasn't, I was effectively creating my own prison. Changing that to “I need help” was the answer to my freedom. I don't have to be isolated or frustrated because we're in this together. Not to sound cheesy here, but there really is strength in numbers.
- There is no such thing as “All or Nothing”. Once I freed myself from that mentality and I challenged myself to reach higher than my illness and limitations by allowing people to help me, I found myself less stressed, less frustrated, and I was able to be more productive while staying true to my strength.
So, how about it? How about we say “No” to “I'm fine” and put power and strength behind the words “I need help”.
I'll start: I need help...turning “I need help” into a positive phrase and taking “I'm fine” out of the rotation.
Quinolone Vigilance Foundation
Monday, December 8, 2014
Executive Director Rachel Brummert met with Thomas Sims from Baron & Budd Law Firm, and presented him with a plaque to thank him for his hard work on the fluoroquinolone law suits.
Rachel writes about it here.
Baron & Budd Law Firm
Saturday, December 6, 2014
Friday, November 28, 2014
Surviving the Holidays with Fluoroquinolone Toxicity
Holidays can be stressful for anyone, but when you live with a chronic illness like Fluoroquinolone Toxicity, it can be especially challenging. Even if we can participate in the festivities, there is likely to be setbacks and payback afterward. On the other hand, if we don't participate, we feel isolated and risk being alienated by family and friends.
Holidays were usually hosted at my house, and I loved it. The house would be decorated, I'd cook appetizers, dinner, and dessert, and socialize with the family. The family would bring their dogs and I'd have a whole house full.
Now that my health is in rapid decline, I've had to learn how to find a balance, and how to do what makes me happy within my own limitations.
Those who are reading this fall into one of two categories: those who suffer with Fluoroquinolone Toxicity, and those who have a friend or loved one who is. With that in mind, I would like to try to address surviving the holidays from both perspectives.
From our perspective:
- Consider shopping online. Going out to shop when you are chronically fatigued or in pain can make us more sick. Perhaps it costs more with shipping costs but the cost to your health would be even greater if you push yourself too hard. Luckily, many retailers offer free shipping during the holidays, and you can also have gifts sent directly to the recipient. If online shopping isn't your thing, consider picking up gifts in small intervals ahead of time, or bringing someone with you.
- Gift bags are a great alternative to finding boxes, wrapping, cutting, and taping when your joints are hurting.
- Let go of the guilt that you're not living up to your old life. Priorities can change after you get sick . It's okay to delegate and to take breaks when you need it, and it's okay to say NO when you're not up to something.
- Let family and friends know ahead of time that you may need to cancel at the last minute depending on your health.
- Plan months in advance. Holidays often include the stress of doing last minute things. Add brain fog into the mix and it can add even more stress. Make lists so it's easier to keep track of holiday planning. Allow extra time in your planning because bad days are bound to happen.
- If your holiday plans require travel, pick a time to travel which suits your health. Some people tend to feel better in the morning, others in the afternoon or evening. Remember to take breaks. Be mindful of your destination, too, because climate can also negatively affect your health.
- Check in with your doctor and see what their hours are during the holidays. Make sure you have enough medication to last through your holiday.
From friends and family perspective:
- If your loved one has Fluoroquinolone Toxicity and they have to cancel at the last minute because they're not feeling well, it's not personal. Some days even existing is hard and they're just trying to survive.
- Someone with Fluoroquinolone Toxicity is not anti-social because they need to rest at certain intervals. Sitting quietly in another room is them listening to their own bodies and knowing what will and will not make them sicker.
- Those affected by Fluoroquinolone Toxicity can be food and chemically sensitive. The food served can cause someone to become very ill and can set back any recovery they have made by days, weeks, months, or longer. The same goes for smells from a fireplace, someone's perfume, Christmas tree, carpet, cleaning agents, air freshener, etc. If your loved one is able to come to your gathering, and they bring their own food, it's not a statement about your food. They could be very sensitive to what you are serving and have their own dietary requirements that they will need you to understand.
- Travel can be very challenging to someone with Fluoroquinolone Toxicity whether it's by car, train, or airplane.
- Fluoroquinolone Toxicity can cause anxiety. Being at a large social gathering can make someone with Fluoroquinolone Toxicity very uncomfortable.
- If your loved one is hosting the holidays, ask how you can help or if you can bring something to make it easier for them. Holidays can be overwhelming for even the healthiest individuals; it's even more so when someone has Fluoroquinolone Toxicity.
Holidays can be stressful for everyone, but keeping your needs in mind, or that of your loved ones, it doesn't always have to be.
On behalf of Quinolone Vigilance Foundation, happy, healthy, and safe holiday season to all!
Quinolone Vigilance Foundation
Monday, November 24, 2014
Quinolone Vigilance Foundation's Public Relations Director and Arizona Ambassador Jenny Frank met with Lincoln Combs and Mark O'Connor from Gallagher & Kennedy Law Firm in Phoenix. QVF is honored to be working with Gallagher & Kennedy. They are investigating fluoroquinolone-induced peripheral neuropathy cases.
Gallagher & Kennedy is a full-service law firm with the top plaintiff’s practice group in the Southwest, specializing in catastrophic injury and wrongful death litigation. Gallagher & Kennedy plaintiffs’
For more information about Mark, Lincoln, or Gallagher & Kennedy, please contact them:
2575 East Camelback Road
Phoenix, Arizona, 85016
After I became disabled from Fluoroquinolone Toxicity in 2006, I found myself apologizing a lot. I apologized every time I felt crappy and couldn't follow through with commitments or keep plans I made with friends and family. I apologized for collapsing into tears when I was frustrated or hurting. I apologized for basically being me.
When I reflect on the last 8 years since this happened, I realize now that I'm not sorry for any of that.
I'm not sorry when I have to cancel when I have a flareup.
I'm not sorry that it's uncomfortable for you to be around me because I'm not the same anymore.
I'm not sorry that I speak out.
I'm not sorry when I have a bad day, because it's not my fault.
I'm not sorry that I have to lay on the couch when I am in pain.
I'm not sorry that you label me as a drug addict when I need pain medication.
I'm not sorry that you won't educate yourself about what is happening to me.
I'm not sorry that I don't look sick.
I'm not sorry that I lost you as a friend because you grew impatient.
I'm not sorry that I don't stay in touch when I am not feeling well.
I'm not sorry that I embarrass you when I educate people who cross my path.
I'm not sorry that I put my physical and emotional health first.
I'm not sorry that I forgot what you said 5 minutes ago.
I'm not sorry that I distanced myself from people and things that stress me out.
I'm not sorry when I can't snap out of it when I have a bad day.
I'm not sorry that I don't make excuses anymore.
I'm not sorry that I'm not independent anymore.
I'm not sorry that I gained weight.
I'm not sorry that I'm tired all the time.
I'm not sorry that I choose to defy the odds.
I'm not sorry that I take the high road.
I'm not sorry that I decide what is best for my health.
I'm not sorry when I am honest about how I am feeling.
I'm not sorry that I stood up and decided that I'm not taking this lying down.
I'm not sorry that I tell a doctor to piss up a rope when they don't believe me.
I'm not sorry that I am proud of my story and how far I have come.
I'm not sorry that I choose to stay positive.
I'm not sorry that I don't let this define me.
I'm not sorry when I ask for help.
I'm not sorry that it's hard for you to see me like this.
I'm not sorry that my scars tell a story of my journey.
I'm not sorry for being me.
I'm not sorry that I am surviving the only way I know how.
I'm not sorry for thriving.
I'm not sorry for what I've been through.
I'm not sorry for being strong.
I'm not sorry living one day at a time, sometimes even minute by minute.
I'm not sorry that I'm not the same anymore.
I'm not sorry that I have a voice.
I'm not sorry that I took my dignity back.
I'm not sorry that I put my needs first.
I'm not sorry for accepting the position of President/Executive Director of Quinolone Vigilance Foundation when I had no idea what I was doing because now I do, and I'm damn good at it.
I'm. Not. Sorry.
Sunday, November 23, 2014
March 27, 2014, Executive Director Rachel Brummert wrote a guest blog for Baron & Budd Law Firm. http://baronandbudd.com/protecting-whats-right/2014/03/the-quinolone-vigilance-foundation/
June 3, 2014- Rachel Brummert wrote a guest blog for Clarkson Law Firm. http://clarksonlawfirm.com/blog/qvf-warns-users-of-cipro-levaquin-and-avelox-of-nerve-damage-risk/
June 16, 2014- Executive Director Rachel Brummert writes a guest blog for Clarkson Law Firm remembering Robert Grozier. http://clarksonlawfirm.com/blog/dead-from-cipro-at-55-quinolone-antibiotic-injury-victims-mourn-loss-of-activist-bob-grozier/
June 24, 2014 Executive Director wrote a guest blog for Clarkson Law Firm. http://clarksonlawfirm.com/blog/it-only-takes-one-how-levaquin-forever-damaged-my-life/
June 30, 2014, CareNovate Magazine published an article written by Executive Director Rachel Brummert. http://carenovatemag.com/personal-account-prescription-destruction-black-box-warning/
August 4. 2014, Quinolone Vigilance Foundation's Executive Director Rachel Brummert wrote a guest blog for Baron & Budd Law Firm regarding tips for when you see your doctor. http://baronandbudd.com/protecting-whats-right/2014/08/tips-for-those-doctor-visits-from-the-quinolone-vigilance-foundation/
August 13, 2014, Quinolone Vigilance Foundation's Executive Director Rachel Brummert writes of her experience for Clarkson Law Firm when she was in the hospital, with tips on how to talk to your doctor there about fluoroquinolones. http://clarksonlawfirm.com/general/avoiding-quinolone-antibiotics-during-surgery-one-womans-story/
August 14, 2014: Executive Director Rachel Brummert wrote an article called Depression and Suicide: Tips and Warning Signs: https://www.facebook.com/notes/quinolone-vigilance-foundation/depression-and-suicide-tips-and-warning-signs/818814418137434
August 18, 2014, Executive Director Rachel Brummert was asked to write a guest blog for Progressive Medical Center. http://www.progressivemedicalcenter.com/progressive-medical-center-supports-the-quinolone-vigilance-foundation/
September 7, 2014- Executive Director Rachel Brummert wrote an article called Explaining Fluoroquinolone Toxicity: https://www.facebook.com/notes/quinolone-vigilance-foundation/explaining-fluoroquinolone-toxicity/830255793659963
September 29, 2014- Quinolone Vigilance Foundation President/Executive Director Rachel Brummert writes a guest blog for Baron & Budd Law Firm about fluoroquinolone-induced brain fog. http://baronandbudd.com/protecting-whats-right/2014/09/levaquin-fluoroquinolones-affect-your-brain/
October 16, 2014- Executive Director Rachel Brummert writes a guest blog for Clarkson Law Firm: http://clarksonlawfirm.com/general/finding-and-working-with-a-levaquin-cipro-or-avelox-nerve-damage-attorney-guest-blog-by-qvf-executive-director-rachel-brummert/
October 28, 2014- Executive Director Rachel Brummert writes a guest blog for Clarkson Law Firm entitled 'But.... Stupid Things People Say About Fluoroquinolone Toxicity': http://clarksonlawfirm.com/blog/but-stupid-things-people-say-about-fluoroquinolone-toxicity-guest-post-by-qvf-executive-director-rachel-brummert/
November 5, 2014- Quinolone Vigilance Foundation's Executive Director Rachel Brummert wrote an article called More Stupid Things People Say About Fluoroquinolone Toxocity: https://www.facebook.com/notes/quinolone-vigilance-foundation/more-stupid-things-people-say-about-fluoroquinolone-toxicity/860032547348954
November 6, 2014- Quinolone Vigilance Foundation's Executive Director wrote an article about Virus vs. Bacterial Infection: https://www.facebook.com/notes/quinolone-vigilance-foundation/viral-vs-bacterial-infections/860172097334999
November 6, 2014- Quinolone Vigilance Foundation's Executive Director Rachel Brummert wrote an article about Travel Tips for Those With Fluoroquinolone Toxicity: https://www.facebook.com/notes/quinolone-vigilance-foundation/travel-tips-for-those-with-fluoroquinolone-toxicity/860580987294110
November 8, 2014- Quinolone Vigilance Foundation's Executive Director Rachel Brummert wrote an article about Fluoroquinolones In Pets: https://www.facebook.com/notes/quinolone-vigilance-foundation/fluoroquinolones-in-pets/861353870550155?notif_t=like
November 22, 2014- Executive Director Rachel Brummert wrote The Uglier Side of Fluoroquinolone Toxicity: https://www.facebook.com/notes/quinolone-vigilance-foundation/the-uglier-side-of-fluoroquinolone-toxicity-and-how-i-am-turning-it-around/868029949882547
November 24, 2014- Executive Director Rachel Brummert wrote I'm Not Sorry: https://www.facebook.com/notes/quinolone-vigilance-foundation/im-not-sorry/869265403092335
November 24, 2014- Executive Director Rachel Brummert wrote I'm Not Sorry: https://www.facebook.com/notes/quinolone-vigilance-foundation/im-not-sorry/869265403092335
November 28, 2014- Executive Director Rachel Brummert wrote Surviving the Holidays with Fluoroquinolone Toxicity. https://www.facebook.com/notes/quinolone-vigilance-foundation/surviving-the-holidays-with-fluoroquinolone-toxocity/871855786166630
December 9, 2014- Executive Director Rachel Brummert wrote I'm Fine: https://www.facebook.com/notes/quinolone-vigilance-foundation/im-fine/877877305564478
January 21, 2015- Executive Director Rachel Brummert wrote Antibiotic Resistance: http://quinolonevigilancefoundation.blogspot.com/2015/01/antibiotic-resistant-infections.html
January 27, 2015- Executive Director Rachel Brummert wrote Invisible Illness: http://quinolonevigilancefoundation.blogspot.com/2015/01/invisible-illness.html
February 16, 2015- Rachel Brummert wrote Fluoroquinolones and Neurodegenerative Disease: http://quinolonevigilancefoundation.blogspot.com/2015/02/fluoroquinolones-and-neurodegenerative.html
April 12, 2015- Rachel Brummert wrote guest blog for the Mesh Warrior Foundation: http://themeshwarrior.com/2015/04/12/meet-rachel-of-the-quinolone-vigilance-foundation-qvf/
Rachel Brummert, President/Executive Director
Ms. Brummert serves as Executive Director. A member of the Board of Directors since April 2012, Ms. Brummert guides strategic planning for the organization and acts as its spokesperson. She oversees the implementation and evaluation of the organization’s programs, and promotes collaboration with researchers, donors, politicians, community groups, and others to further the organization’s mission.Ms. Brummert holds a B.S. from Cabrini College in Special Education and Elementary Education, and an M.S. from Rutgers University in Substance Abuse Counseling. Ms. Brummert resides in New Jersey with her husband.
Mr. Arnold serves as Vice President of the Board. He works in international development and holds a B.A. in International
History from Hamilton College. Matt also has a background in education and teaching English as a secondary language. Mr. Arnold resides in Washington, DC.
Ms. Schutz serves as Assistant Director, Coordinator of QVF’s Ambassador program, and is Ambassador for South Australia and Georgia State Ambassador in the United States. She runs a support group for victims in Australia and was directly affected by a fluoroquinolone, as was her American fiancee. Donna is very active in advocacy by educating patients, doctors and pharmacists in Australia and the United States. Ms. Schutz resides in South Australia with her two children.
Christina Manthos-Sorrell, Treasurer
Ms. Manthos-Sorrell has been a member of the Board of Directors since April 2011. As Treasurer, she oversees the foundation’s financial records, tracks fundraising activities, develops the annual operating budget, and manages the foundation’s expenses, with an emphasis on allocating funds for research projects.Ms. Manthos-Sorrell holds degrees in Environmental Engineering from the University of Delaware (B.S.) and Manhattan College (M.S.). She has experience designing sewer systems and developing computer models to study wastewater
treatment plants. She has also served on the project management team for the construction of a $2 billion dollar water treatment plant in New York City. Ms. Manthos-Sorrell resides in New York with her husband.
Ms. Day was elected to the Board of Directors in August 2014. As Corporate Secretary, she is responsible for facilitating communication both within the QVF organization and with the public, maintaining the foundation’s documents and records, and recording minutes of all board meetings. Ms. Day has over 14 years of secretarial experience, and a degree in office administration from Ivy Tech State College in Indiana. Ms. Day resides in Indiana.
Dr. Minkler has been a licensed chiropractor for more than 16 years and is also a certified chiropractic sports physician. Dr. Minkler specializes in
sports rehabilitation and pediatric chiropractic; her practice also includes prenatal and delivery care, hypnotherapy, and acupuncture.A Chicago resident for 18 years, Dr. Minkler received a D.C. and a B.S. in Human Biology from National College of Chiropractic in Lombard, IL, as well as a B.S. in Biology and Psychology from Bradley University in Peoria, IL. Dr. Minkler resides in Chicago.
Dr. Joseph Hudak was elected to the Board of Directors in October 2014. He received his Doctor of Chiropractic Degree from New York Chiropractic College after completing his undergraduate studies at Middlesex County College. To further his education, he completed an intensive residency program at Levittown Health Center in Long Island, New York. He then went on to work as a Senior Associate at Park Avenue Chiropractic in Manhattan before returning to the Edison Area to open his state of the art office facility where he currently practices. Dr. Hudak is a member of the International Chiropractors Association, New Jersey Council of Chiropractors, the International Chiropractic Pediatric and the Friends and Alumni Network of NY Chiropractic College. He is co-chair of the Edison/Clara Barton Heights Neighborhood Preservation Committee. He is a member of the Edison Chamber of Commerce and volunteers his services by performing spinal/scoliosis screenings for many health fairs in the community. Dr. Hudak resides in New Jersey with his wife and two children.
QVF Volunteer Staff:
Ms. Boz, serves as a consultant and has worked in the medical community since 1992. Ms. Boz obtained her degree from Mount Carmel College of Nursing and has worked exclusively in the ICU and ER departments. Ms. Boz resides in Indiana with her husband and children.
Ms. Chiovare has worked as a fundraiser for the Honolulu Symphony and for the Historic Hawaii Theatre for over 5 years, and serves as Hawaii State Ambassador. Ms. Chiovare serves as Assistant Fundraising Director, assisting Michelle Fewer, and resides in Hawaii with her husband.
Ms. Frank serves as the Public Relations Director for QVF and Arizona State Ambassador. Ms. Frank is an educator and holds degrees in Theatre and Drama from Trinity University (B.A.) and the University of Michigan (M.F. A.), as well as a Master’s degree in Elementary Education from the University of Phoenix. In addition to volunteering for QVF, Ms. Frank serves on the Executive Board for her local teacher’s association and political action committee. She resides in Arizona with her husband.