Sunday, November 23, 2014

Meet the QVF Team







QVF Board:



Rachel Brummert, President/Executive Director

Ms. Brummert serves as Executive Director. A member of the Board of Directors since April 2012, Ms. Brummert guides strategic planning for the organization and acts as its spokesperson. She oversees the implementation and evaluation of the organization’s programs, and promotes collaboration with researchers, donors, politicians, community groups, and others to further the organization’s mission.Ms. Brummert holds a B.S. from Cabrini College in Special Education and Elementary Education, and an M.S. from Rutgers University in Substance Abuse Counseling. Ms. Brummert resides in New Jersey with her husband.




Matthew Arnold, Vice President

Mr. Arnold serves as Vice President of the Board. He works in international development and holds a B.A. in International
History from Hamilton College. Matt also has a background in education and teaching English as a secondary language. Mr. Arnold resides in Washington, DC.




Donna Schutz, Assistant Director

Ms. Schutz serves as Assistant Director, Coordinator of QVF’s Ambassador program, and is Ambassador for South Australia and Georgia State Ambassador in the United States. She runs a support group for victims in Australia and was directly affected by a fluoroquinolone, as was her American fiancee. Donna is very active in advocacy by educating patients, doctors and pharmacists in Australia and the United States. Ms. Schutz resides in South Australia with her two children.





Christina Manthos-Sorrell, Treasurer

Ms. Manthos-Sorrell has been a member of the Board of Directors since April 2011. As Treasurer, she oversees the foundation’s financial records, tracks fundraising activities, develops the annual operating budget, and manages the foundation’s expenses, with an emphasis on allocating funds for research projects.Ms. Manthos-Sorrell holds degrees in Environmental Engineering from the University of Delaware (B.S.) and Manhattan College (M.S.). She has experience designing sewer systems and developing computer models to study wastewater
treatment plants. She has also served on the project management team for the construction of a $2 billion dollar water treatment plant in New York City. Ms. Manthos-Sorrell resides in New York with her husband.






Leslie Day, Secretary

Ms. Day was elected to the Board of Directors in August 2014. As Corporate Secretary, she is responsible for facilitating communication both within the QVF organization and with the public, maintaining the foundation’s documents and records, and recording minutes of all board meetings. Ms. Day has over 14 years of secretarial experience, and a degree in office administration from Ivy Tech State College in Indiana. Ms. Day resides in Indiana.




Dr. Deanna Minkler  D.C. C.C.S.P., C.H.T., General Board Member

Dr. Minkler has been a licensed chiropractor for more than 16 years and is also a certified chiropractic sports physician. Dr. Minkler specializes in
sports rehabilitation and pediatric chiropractic; her practice also includes prenatal and delivery care, hypnotherapy, and acupuncture.A Chicago resident for 18 years, Dr. Minkler received a D.C. and a B.S. in Human Biology from National College of Chiropractic in Lombard, IL, as well as a B.S. in Biology and Psychology from Bradley University in Peoria, IL. Dr. Minkler resides in Chicago.




Dr. Joe Hudak ,D.C.

Dr. Joseph Hudak was elected to the Board of Directors in October 2014. He received his Doctor of Chiropractic Degree from New York Chiropractic College after completing his undergraduate studies at Middlesex County College. To further his education, he completed an intensive residency program at Levittown Health Center in Long Island, New York. He then went on to work as a Senior Associate at Park Avenue Chiropractic in Manhattan before returning to the Edison Area to open his state of the art office facility where he currently practices. Dr. Hudak is a member of the International Chiropractors Association, New Jersey Council of Chiropractors, the International Chiropractic Pediatric and the Friends and Alumni Network of NY Chiropractic College. He is co-chair of the Edison/Clara Barton Heights Neighborhood Preservation Committee. He is a member of the Edison Chamber of Commerce and volunteers his services by performing spinal/scoliosis screenings for many health fairs in the community. Dr. Hudak resides in New Jersey with his wife and two children.






QVF Volunteer Staff:



Lori Caddick Boz RN, Consultant

Ms. Boz,  serves as a consultant and has worked in the medical community since 1992. Ms. Boz obtained her degree from Mount Carmel College of Nursing and has worked exclusively in the ICU and ER departments. Ms. Boz resides in Indiana with her husband and children.




Victoria Chiovare, Assistant Fundraising Director

Ms. Chiovare has worked as a fundraiser for the Honolulu Symphony and for the Historic Hawaii Theatre for over 5 years, and serves as Hawaii State Ambassador. Ms. Chiovare serves as Assistant Fundraising Director, assisting Michelle Fewer, and resides in Hawaii with her husband.




Jenny Frank, Public Relations Director

Ms. Frank serves as the Public Relations Director for QVF and Arizona State Ambassador. Ms. Frank is an educator and holds degrees in Theatre and Drama from Trinity University (B.A.) and the University of Michigan (M.F. A.), as well as a Master’s degree in Elementary Education from the University of Phoenix. In addition to volunteering for QVF, Ms. Frank serves on the Executive Board for her local teacher’s association and political action committee. She resides in Arizona with her husband.


 










The History of Quinolone Vigilance Foundation



A complete history of Quinolone Vigilance Foundation:

https://www.facebook.com/notes/quinolone-vigilance-foundation/the-history-of-qvf/787401714612038

Friday, November 21, 2014

The Uglier Side of Fluoroquinolone Toxicity... and how I am turning it around.






The Uglier Side of Fluoroquinolone Toxicity...
and how I am turning it around.

In 2006 I sat on the exam table at my primary care physician's office, feeling utterly miserable. My face felt like it was filled with concrete, I was congested, and my throat felt thick.

I left the office feeling hopeful because I'd be feeling better in a few days. With a prescription for Levaquin in hand, I went about the rest of my day by having it filled at the pharmacy, and came home to rest.

A few days later, I felt “off”. I don't know how else to describe it. I stopped the medication wondering if I was having a reaction to it. I thought I would be okay. After all, on the pharmacy inserts it says to discontinue if you have any issues with it.

A month later, I had my first of nine tendon ruptures. Shortly thereafter the brain fog, peripheral neuropathy, arrhythmia, tremors, vertigo, tinnitus, persistent gastric problems, and other adverse reactions started.

Fluoroquinolone Toxicity is ugly in and of itself. It is a difficult existence and it can rob you of so many things. I have come to find out that there is an even uglier side to Fluoroquinolone Toxicity: when it morphs into something even more life threatening.

In 2010, four years after I became disabled after taking Levaquin, I was diagnosed with Neurosarcoidosis, a neurodegenerative disorder. A time will come when I will no longer be able to take care of myself. The seizures will become more frequent and my cognitive function will decrease.

There is a direct link between fluoroquinolone antibiotics such as Levaquin (levofloxacin), Cipro (ciprofloxacin), and Avelox (moxifloxacin) and neurodegenerative disorders such as Parkinson's, Alzheimers, ALS, Neurosarcoidosis, and MS, according to a document signed by a Division Director at the FDA obtained through a Freedom of Information request. The FDA never told doctors or patients of this link. Had I been warned of this, I would never have taken those fateful doses of Levaquin.

A few days ago, I was on an exam table at my Gastroenterologist's office, not unlike the one in my primary care physician's office in 2006. I received another life-threatening diagnosis after results came back from a recent biopsy that was done during an endoscopy.

If there is a silver lining to any of this, it's that following my Neurosarcoidosis diagnosis, I had to take a hard look at my life since I was facing my own mortality. Over the years, I've learned some coping strategies that have helped me weather these difficult diagnoses, and I bring these coping strategies to my new diagnosis and I am prepared to fight with everything I have.


  • I learned what I have room for in my life. I surrounded myself with positive people and I distanced myself from people and situations which added to my stress.

  • I learned how to relinquish control and delegate things I didn't need to do myself. Letting go of that control allowed me to focus on my health. I used to be someone who had to do it all, throwing myself into work and not taking care of myself. I thought if I threw myself into work, that I could avoid having to deal with it. It isn't selfish putting myself first and doing things that make me happy because in the end, focusing on what makes me happy adds some sugar to the lemons that were served to me.

  • I learned that I do have control over my illness and treatments. That control is asserted by the choices I make and the attitude I choose every day. That's a powerful thing.

  • I choose not to dwell on what I can't do anymore and who I used to be before I got sick. I would be cheating myself out of a good life if I dwelled on what can no longer be. It is a life changing event when you are dealing with life-threatening illnesses. My life is what I make of it, not what life throws at me and I am not defined by what is happening to me.

  • I choose to nurture my sense of humor. I love to laugh and I embrace my warped sense of humor. I watch shows and movies that make me laugh. I play with my silly dog who is a total goofball.

  • I'm not hard on myself anymore if I am having a bad day. I stopped apologizing for the days when I can hardly function. I learned it's okay to have a bad day but that I don't have to be stuck there.

I am often asked, “Don't you ever ask 'Why Me?' or 'Why Did This Happen?'”

Of course I do. And I know why. It happened because I took a medication that was supposed to help me feel better and it did horrific damage to my body. If I could do it all over again, I never would have taken Levaquin. Unfortunately, this did happen and I am doing my best to cope. I am also making it my personal and professional mission to make sure this doesn't happen to anyone else.

For more information about Fluoroquinolone Toxicity, visit us at www.SaferPills.org

Rachel Brummert
President/Executive Director
Quinolone Vigilance Foundation




Wednesday, November 19, 2014

WCPO in Cincinnati picks up Dave Biscobing's news story





Thank you WCPO in Cincinnati for their news story featuring Quinolone Vigilance Foundation's Public Relations Director Jenny Frank. WCPO picked up Dave Biscobing's story, which originally aired on ABC15 in Phoenix.


Tuesday, November 18, 2014

New QVF wristbands





We have redesigned our (silicone) wristbands. One side says Say NO to FQs, the other says saferpills.org. To purchase a wristband via PayPal, our PayPal address is donations@saferpills.org. Make sure you let us know how many you want in the comments section. They are $5.00, which includes shipping within the US and Canada. For international shipping, it is $10.


Monday, November 17, 2014

Executive Director Rachel Brummert meets with Capital Health





Executive Director Rachel Brummert meets with administrators at Capital Health Medical Center to talk about safer prescribing practices for fluoroquinolone antibiotics.

Sunday, November 16, 2014